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Boy with rare condition gets ‘out of this world’ bedroom

BINGHAMTON (WBNG) – A little boy from Binghamton with a rare medical condition got the surprise of a lifetime on Sunday thanks to A Room to Heal.

The organization unveiled a new bedroom for four-year-old Brayden Deno, who was diagnosed with a rare form of Spinal Muscular Atrophy in October.

“His muscles are deteriorating and his muscles strengths are getting weaker and weaker, and he loses his balance,” said Megan Deno, Brayden’s mother.

Brayden’s condition made it hard for him to walk upstairs to his room, so A Room To Heal decided to step in and help.

“We came in and met with him and spoke with his family and decided that we are going to turn their dining room into his bedroom on the first floor,” said Lisa Brown from A Room To Heal.

After months of preparation and four days of construction, Brayden received a dream, ‘Toy Story’ and space themed bedroom at no cost.

“When we met Brayden, he immediately said he wanted a Buzz Lightyear room so we ran with that. We got him a new bed that’s lower to the ground so that will help him get in and out of bed. It has lighting underneath the bed so he can change the color of the bed,” said Brown.

After seeing his new bed, desk, toys, TV and an indoor tent, Brayden was all smiles.

“I think it’s amazing,” said Brayden.

“You could really tell that loved everything about it and he will definitely grow and love every minute of it,” said Megan.

A Room to Heal hopes his new room will help launch his road to recovery.

“Not only is the child able to have a place that’s more comfortable for them to heal, as our mission states. But it’s huge for the families too to see that community support and to be able to provide their child with something that they might not have the time or the resources to provide the child themselves,” said Brown.

The Deno family said they were extremely impressed with how the room turned out and are forever grateful for the community’s support.

“It just shows how many people love Brayden and would do anything for him,” said Megan.

Tyler Brown

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