(WBNG) - The Huntington's Disease Society of America's (HDSA) Northeast Region will host the Binghamton Virtual Team Hope Walk/Ann's 5K Race on Saturday, May 8th at 10 AM.
Huntington's disease (HD) is a brain disease that is passed down in families from generation to generation.
It causes the progressive breakdown of nerve cells in the brain, deteriorating a person’s physical and mental abilities.
HD is described as having ALS, Parkinson’s, and Alzheimer’s diseases – simultaneously.
The HD population in New York there is currently more than 19,000. Today, there are approximately 41,000 symptomatic Americans and 200,000 at-risk of inheriting the disease.
For race coordinator Sally Forbidussi, the cause is a personal one, as a member of her family has the disease.
Each year, the event is held in honor and named after Ann Trip, currently battling Huntington’s disease (HD). All proceeds support HDSA’s mission to improve the lives of people affected by HD and their families.
This year will be the 9th annual Ann's 5K in conjunction with the HDSA's Team Hope Walk.
"Because Huntington's Disease is something you can only get genetically passed down from a parent not so many people know about it. So it is really important to get the word out there and the awareness so that people can try to help make a difference and the more money that is raised and the more people that know about it the better the chance of hopefully finding a cure someday which would be really great," said Forbidussi
The event can be done either in person at Otsiningo Park or virtually from anywhere you would like.
"Life is something that we just have to live and there are disappointments sometimes and there are lots of really good things but many of us are affected by disability whether it be Huntington's or something else. It might get tough but for that person who has Huntington's disease, they are still a person on the inside and they appreciate all the love and care."